Using technology to manage type 1 diabetes: a personal journey (P2)

Let the questions begin.

DV: So, let’s fast forward to today. Sue, you are embracing various forms of technology - using apps on smart devices, Continuous Glucose Monitoring (CGM) systems and recently an insulin pump... tell us more!

Sue: I started using a pump four years ago. The appeal initially was to get better control. My endocrinologist said it wasn’t for everyone and it does not necessarily guarantee better control. My control did not get better as my HbA1c stayed the same. I also needed to drive the pump as it wasn’t set-and-forget. I always avoid inserting my pump into lumpy bits. I mean, twice a week with a pump is much better than injecting up to seven times a day to preserve my injection sites.

I found the pump easy to use. It can take a little while to get used to it. I recall when I did my first set change, I was shaking when I got the instructions out, then realised the pump told me what to do step-by-step.

I am still pumping today, although it is a constant reminder of my diabetes. I don’t wear or buy certain clothes as I need to consider where to put my pump. I tried an attached CGM but was not a fan. It was attached to my body, and kept beeping at me all the time, waking me up at night, so I went back to finger pricking. I loved the Libre though it was not subsided back then. At a $100 a pop, I used it for two weeks before seeing either my endocrinologist or my diabetes educator. So, I would use the Libre three to four times a year. After the subsidy came in, I started using Libre regularly.

DV: Do you use any apps to manage your type 1 diabetes?

Sue: After attending OzDAFNE, I use the Calorie King app to help with carbohydrate counting when eating out and sometimes at home. I use it for unusual foods to give me a rough idea, as I do not take scales out to restaurants. I also bought the Calorie King book.

I tried the Libre app also. Otherwise, I do not really use other apps, although I am not averse to the idea if it helps. I would like a health professional to demonstrate and support me to use apps.

DV: Comparing the different technology, what types of technology do you find easy, inviting or intuitive to use?

Sue: Libre 2 was very easy, and the pump is quite easy. It took time to get used to the pump, I was worried if the pump failed, but there is support available. When I was sick, I put the pump on sick day mode and checked my ketones. If I’m not well enough, I would call an ambulance. While that sounds drastic, I live alone, so better to be safe than sorry.

DV: Indeed, alarm fatigue is a very real thing. If you have a chance to wind back the clock, would you approach using technology any differently? If so, how?

Sue: I would not change it. I did not jump on board with a pump as I was initially unsure, so I waited till I was ready to give it a go. People should not be pressured into it, as it is hard work. Apart from showering, my pump is always on. The Libre sensor is less invasive than a pump. Not everyone needs a pump as they can use Libre alone. Save your fingers for a while and see how you go.

DV: What tips or advice would you give someone living with type 1 diabetes, or their carer, who are new to diabetes, around using technology to help manage the condition?

Sue: Take your time and try out different technology. If it doesn’t work, you can always go back. If it makes your life easier, then go for it. Tech is amazing. I’m all for embracing it, in your own time and when you are ready.

Useful resources:

Diabetes management apps

Diabetes in the workplace

NDSS Helpline 1800 637 700